INTELLECTUAL IMPAIRMENT AND EXPERIENCE OF EXTREME POVERTY IN A SINGLE PARENT FAMILY (CASE STUDY IN THE REPUBLIC OF MOLDOVA CONTEXT)
DOI:
https://doi.org/10.24234/se.v7i2.6Keywords:
parenthood and fatherhood with intellectual impairments, family resources, extreme poverty, social exclusion, social welfare, family dynamics, poverty alleviation, parental supportAbstract
The article analyzes the issue of family resources in a family with a single father with mental retardation raising two adolescents in conditions of extreme poverty. The research methodology is based on the model of case study qualitative research within the phenomenological “life world” approaches. The study has an entire description of the father’s “life world” and the structural, constituent, and essential elements of his day-to-day parenting experience. It is shown that the family experience is struggling with extreme poverty within the conditions of severe social exclusion and is governed by the father's family history with a class nature. Current family resources (health, education, social, and economic) are characterized as being affected by different types of deficiency and dependence on external “donors”. The discussion is raising awareness of the role of special education in the process of structuring essential elements of the “life world” experience in such families, in general, and conditions of extreme poverty, in particular.
References
Beresford, P. & Wilsson, A. (2002). Genes spell danger: Mental health service users/survivors, bioethics and control, Disability and society, 17 (5), p. 541-553. DOI: https://doi.org/10.1080/09687590220148513
Booth, T. & Booth, W. (1994). Parenting under Pressure: Mothers and Fathers with Learning Difficulties, Buckingham, Open University Press.
Booth, Т. & Booth, W. (1998). Growing Up with Parents who Have Learning Difficulties, London. DOI: https://doi.org/10.1177/146900479800200304
Center of Human Rights in Moldova (2015). Observance of Human Rights in the Republic of Moldova in 2014. file:///C:/Users/liakaa/Downloads/Moldova_OM_Annual%20Report_2014_EN.pdf
Dahlberg, K., Drew, N. & Nyström, M. (2001). Reflective Lifeworld Research. Lund, Studentlitteratur.
Espe-Scherwindt, M. & Kerlin S. (1990). Early intervention with parents with mental retardation: do we empower or dispower?, Infants and Young Children, 2, p. 21-28. DOI: https://doi.org/10.1097/00001163-199004000-00005
Edgerton, R.B. (1999). Foreword. /Journal of intellectual and Developmental Disability, 24, p. 1-2. DOI: https://doi.org/10.1080/13668259900033831
Feldman, M.A. (1994). Parenting education for parents with intellectual disabilities: a review of outcome studies, Research in Developmental Disabilities, 15 (4), p. 299-332. DOI: https://doi.org/10.1016/0891-4222(94)90009-4
Hathaway, S. (1947). Planned parenthood and mental deficiency, American Journal of Mental Deficiency, 52 (2), p. 182-186.
Hick, P., Visser, J. & MacNab N. (2007). Education and Social exclusion, Multidisciplinary Handbook of Social Exclusion Research, Edited by D. Abrams, J. Christian and D. Gordon, John Wiley & Sons, s. 95-113. DOI: https://doi.org/10.1002/9780470773178.ch6
Hodge, N. (2008). Evaluating, Lifeworld as an emancipator methodology, Disability & Society, 23 (1), p. 29-40. DOI: https://doi.org/10.1080/09687590701725575
Huang, J., Guo, B. & Kim, Y. (2010). Food insecurity and Disability: Do economic resources matter? Social Science Research, 39 (1), p. 111-124. DOI: https://doi.org/10.1016/j.ssresearch.2009.07.002
Kalinnikova, L. (2013). «Bednii vdvoine»: chelovecheskije i semejnije resursi, Vestnik SAFU, Sotsialjnii i Gumanitarnii Nauki, 6, p.126-134.
Keith, L. & Morris, J. Easy targets: A disability rights perspective on the 'children as carers' debate, Critical social policy, 15 (44-45), p. 36-57. DOI: https://doi.org/10.1177/026101839501504403
Kilkey, М. & Clarke H. (2010). Disabled men and fathering: opportunities and constraints, Community, Work and Family //13 (2), p. 127–146. DOI: https://doi.org/10.1080/13668800902923738
Liviţchi, О. (2011). Eradicarea sărăciei: concepte şi strategii, Institutul de Economie, Finanţe şi Statistică, Academia de Ştiinţe a Moldovei, Chisinau, IEFS, st 18-29.
Llewellyn, G. & McConnell, D. (2002). Mothers with learning difficulties and their support networks, Journal of Intellectual Disability Research, 46 (1), p. 17-34. DOI: https://doi.org/10.1046/j.1365-2788.2002.00347.x
Llewellyn, G. (1995). Relationships and social support: views of parents with mental retardation/intellectual disability, Mental Retardation, 33 (6), p. 349-363.
Madanipour, A., Cars ,G.T. & Allen, J. (eds). (1998). Social Exclusion in European Cities, London, Jessica Kingsley.
Malofeev, N. (2003). Zapadnaja Evropa: evolutsiya otnosheniya obshestva i gosudarstva к litsam s otkloneniyami v razvitii, Мoskva, Examen.
Mickelson, P. (1947). The feebleminded parent: a study of 90 family cases, American Journal of Mental Deficiency, 54 (4), p. 674-691.
Mickelson, P. (1949). Can mentally deficient parents be helped to help their children better care?, American Journal of Mental Deficiency, 53 (3), p. 517-534.
Mont, D. & Nguyen, C. (2013). Does Parental Disability Matter to Child Education? Evidence from Vietnam, World Development, 48 (C), p. 88-107. DOI: https://doi.org/10.1016/j.worlddev.2013.04.001
Moore М., Beazly S. & Maelzer J. (1998). Researching disability issues. Buckingham, UK, Open University Press.
Nirje, B. (1999). How I came to formulate the Normalization principle. I: Flynn, R. J. / Lemay, R. A. (red.): A Quarter-Century of Normalization and Social Role Valorization: Evolution and Impact. Ottawa (University of Ottawa Press), 17–50. DOI: https://doi.org/10.2307/j.ctt1cn6s45.4
O’Connor, C., Fernandez, S.D. & Race, (2006). Class and Dispropontionality: Reevaluating the Relationship between Poverty and Special Education Placement, Educational Research, 35 (6), p. 6-11. DOI: https://doi.org/10.3102/0013189X035006006
Pfeiffer, D. (2007). Eugenics and Disability Discrimination, Disability & Society, 9 (4), p. 481-499. DOI: https://doi.org/10.1080/09687599466780471
Reid, D.K. & Knight M.G. (2006). Disability justifies exclusion of minority students: A critic history grounded in disability studies, Educational Researcher, 35 (6), p. 18-23. DOI: https://doi.org/10.3102/0013189X035006018
Sheerin F. (1998). Parents with learning disabilities: a review of the literature, Journal of Advanced Nursing, 28 (1), p. 126-133. DOI: https://doi.org/10.1046/j.1365-2648.1998.00636.x
Stake, R. (1995). The art of Case Study Research, Sage publication.
The Bureau of National of Statistics of the Republic of Moldova, 2014 https://statistica.gov.md/en/statistical-yearbook-of-the-republic-of-moldova-edition-2013-was-12_535.html
Tymchuk, A., Andron, L. & Rahbar, D. (1988). Effective decision-making/problem-solving training with mothers who have mental retardation, American Journal of Mental Retardation, 92 (6), p. 510-516.
Tymchuk, A. & Andron, L. (1990). Mothers with mental retardation who do or do not abuse or neglect their children, Child Abuse and Neglect, 14 (3), p. 313-323. DOI: https://doi.org/10.1016/0145-2134(90)90003-C
Tymchuk, A. & Andron, L. (1992). Project parenting; child international training with mothers who are mentally handicapped, Mental Handicap Research, 5 (1), p. 4-32. DOI: https://doi.org/10.1111/j.1468-3148.1992.tb00168.x
Ulanovskij, A. (2005). Fenomenologicheskii podhod как kachestvennaya issledovateljskaya metodologiya, Avtoreferat kand. psîhol. Nauk, Мoskva.
Ulanovskij, A. (2007). Fenomenologicheskij metod v psichologii, psihiatrii i psihiterapiî, Metodologiya i istotiya psichologii, 1 (2), p. 130-150.
Von- Weinberg, G. (2013). Von der sozialen Exklusion zur Inklusion von Menschen mit Behinderungen - eine sozialhistorische Skizze I Zeitschrift fur Evangelische Ethic, 57, p.169-182. DOI: https://doi.org/10.14315/zee-2013-57-3-169
Walker, A. & Walker, C. (eds). (1997). British Divided. London, CPAG .
Walmsley, J. (2001). Normalization, emancipator research and inclusive research in learning disability, Disability & Society, 16 (2), p. 187-205. DOI: https://doi.org/10.1080/09687590120035807
Weathers, R.R. (2005). A Guide to Disability Statistics from the American Community Survey, Rehabilitation Research and Training Center on Disability Demographics and Statistics, Cornell University, Ithaca, NY.
Weiber, I., Berglund, J., Tengland, P.-А. & Eklund, M. (2011). Children to women with intellectual disabilities: 5-year incidence in Swedish county, Journal of Intellectual Disability Research, 55 (11), p. 1078-1085. DOI: https://doi.org/10.1111/j.1365-2788.2011.01441.x
Williams G. (1996). Representing disability: Some questions of phenomenology and politics. / Exploring
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